Now accepting applications for TSSUS Conference Scholarship! Click here

Turner Syndrome Support 
of St. Louis
  • Home
  • Events
    • Local Events
    • Variety Show
    • Picnic
    • Google Calendar
  • Clinics
    • Cardinal Glennon
    • Children's Hospital
    • Adults
  • Get Involved
    • Join A Group
    • Increase Awareness
    • Promote Research
  • Resources
    • New Diagnosed TS Families
    • Books
    • Organizations
    • Resources
    • En Español
  • Butterfly Spotlight
  • About Us
  • Ways To Donate
    • PayPal Giving Fund
    • Check
    • Venmo
    • GuideStar
    • Donation of Goods
    • Amazon Wish List
    • eBay for Charity
  • More
    • Home
    • Events
      • Local Events
      • Variety Show
      • Picnic
      • Google Calendar
    • Clinics
      • Cardinal Glennon
      • Children's Hospital
      • Adults
    • Get Involved
      • Join A Group
      • Increase Awareness
      • Promote Research
    • Resources
      • New Diagnosed TS Families
      • Books
      • Organizations
      • Resources
      • En Español
    • Butterfly Spotlight
    • About Us
    • Ways To Donate
      • PayPal Giving Fund
      • Check
      • Venmo
      • GuideStar
      • Donation of Goods
      • Amazon Wish List
      • eBay for Charity
Turner Syndrome Support 
of St. Louis
  • Home
  • Events
    • Local Events
    • Variety Show
    • Picnic
    • Google Calendar
  • Clinics
    • Cardinal Glennon
    • Children's Hospital
    • Adults
  • Get Involved
    • Join A Group
    • Increase Awareness
    • Promote Research
  • Resources
    • New Diagnosed TS Families
    • Books
    • Organizations
    • Resources
    • En Español
  • Butterfly Spotlight
  • About Us
  • Ways To Donate
    • PayPal Giving Fund
    • Check
    • Venmo
    • GuideStar
    • Donation of Goods
    • Amazon Wish List
    • eBay for Charity

Promote Research

NIGMS Repository​

NIGMS Repository at Coriell Institute for Medical Research - "Banking for the future" by donating a sample to a cell repository is an investment that has the potential to greatly accelerate, improve and advance scientific research on Turner Syndrome. Please consider donating a sample to the NIGMS Repository at Coriell.​ Download the file below for more information. 

Clinical Trials

Find a clinical trial that is right for you!

Search Clinical Trials

Join the Turner Syndrome Research Exchange (TSRX)

The Turner Syndrome Research Exchange is an exclusive global survey designed to help researchers gain a deeper understanding of Turner Syndrome. The goal is improved diagnosis and medical care, as well as empowerment of patients and families through knowledge, connections, and support.

What is different from any other surveys? You will have full control of your de-identified data, choosing how you'd like your information to be shared. Once you join, you are also able to explore other's data to help you understand your own health.

Stand together with TSRX to help the Turner Syndrome community. All patients and caregivers are encouraged to join!

Find out more

Participate in a Mathematics Study, ages 4-7

"Mathematics Learning Among Children With or Without Turner Syndrome." The University of Minnesota is recruiting child participants for a study to understand how early language, problem-solving, and number skills shape future mathematical learning. Download the file below for more information. 


Participate in a NIH Study about POI, ages 4-12

Turner syndrome can cause premature ovarian insufficiency (POI) What is POI? POI occurs when your ovaries stop functioning normally before age 40. In individual with Turner Syndrome, POI occurs very early in life usually before 12 years of age. When this happens, your ovaries don't produce normal amounts of the hormone estrogen or release eggs regularly. This condition often leads to infertility. We are conducting a study to see why POI happens and if ovarian tissue freezing will help to preserve fertility. Download the file below for more information. 


Downloads

NIGMS Repository (pdf)Download
University of Minnesota Math Study (pdf)Download
NIH POI Study (pdf)Download

Copyright © 2019 Turner Syndrome Support of St. Louis - All Rights Reserved.

 Turner Syndrome Support of St. Louis is a registered 501(c)(3) nonprofit organization. 

  • Our By-Laws

Welcome Newly Diagnosed TS Families!

We would like to meet you! Check out our Butterfly Phone Line and how you can connect with us.

Learn more