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Turner Syndrome Support 
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    • Home
    • Events
      • Local Events
      • Variety Show
      • Picnic
      • Google Calendar
    • Clinics
      • Cardinal Glennon
      • Children's Hospital
      • Adults
    • Get Involved
      • Join A Group
      • Increase Awareness
      • Promote Research
    • Resources
      • New Diagnosed TS Families
      • Books
      • Organizations
      • Resources
      • En Español
    • Butterfly Spotlight
    • About Us
    • Ways To Donate
      • PayPal Giving Fund
      • AmazonSmile
      • eBay for Charity
      • Check
      • Donation of Goods
      • GuideStar
Turner Syndrome Support 
of St. Louis
  • Home
  • Events
    • Local Events
    • Variety Show
    • Picnic
    • Google Calendar
  • Clinics
    • Cardinal Glennon
    • Children's Hospital
    • Adults
  • Get Involved
    • Join A Group
    • Increase Awareness
    • Promote Research
  • Resources
    • New Diagnosed TS Families
    • Books
    • Organizations
    • Resources
    • En Español
  • Butterfly Spotlight
  • About Us
  • Ways To Donate
    • PayPal Giving Fund
    • AmazonSmile
    • eBay for Charity
    • Check
    • Donation of Goods
    • GuideStar

Book: "The Silent Syndrome"

Written by Cheryl Jost, former Turner Syndrome Society of St. Louis Chapter President

This book is a heartwarming story of one TS woman's journey of agony and pain, acceptance, and unconditional love. Join her as she educates you about TS and tells you about her unbelievable voyage across the world to finally find her two amazing children and the relentless dedication to achieve the family she and her husband always dreamed of. This voyage created a deep passion to support other TS families and allowed her to meet some incredible people along the way. This book will describe how her diagnosis of TS allowed her to educate the public about this rare chromosomal disorder with accurate information, break down TS stereotypes/misconceptions, and bring hope and support to newly diagnosed TS families. She has been fortunate to do this in many ways and continues doing so today on a national level through the Turner Syndrome Society of the US (TSSUS). 


This is an opportunity to share with TS individuals and their family and friends her story of living with TS and the true and honest feelings revealed through different life experiences and its affects. You won't want to miss this intriguing story of an amazing roller-coaster ride of discrimination, three emotional IVF attempts, the miracle of how she and her husband found their two adoptions, and the awesome work being done today to help TS individuals lead a normal and productive life. 


This book will also offer a wide range of medical and support resources and offer hope and inspiration to newly diagnosed families who think they are out there all alone raising their TS daughter. 


 $3.99 E-Book,  $15.99 Paperback,  $24.99 Hardcover 


You can purchase your own copy of Cheryl's book at:

Amazon

Xlibris

Barnes & Noble
 

Book: "Tina Talks Turner's"

Tina Talks TURNER'S - A Girl's Guide to Living with TS

Tina Talks Turner’s is a video and interactive companion book that helps young girls understand their Turner Syndrome diagnosis and helps caregivers share that diagnosis. The child-friendly Tina Talks Turner’s book walks a young girl through her diagnosis, from receiving growth hormone treatment to feeling different amongst her classmates. A theme of hope permeates Tina’s message, showing girls that they are not alone in their diagnosis and can live the life of their dreams. 


The companion book features journal pages for girls to share their feelings – providing meaningful insight to facilitate an open discussion. 

View the video and a book sample

Complementary Books

Thanks to your generous donations, we are able to provide these 3 books for FREE to families of girls with Turner Syndrome who live in the St. Louis and surrounding areas. If you have a TS butterfly in your family, live in the St. Louis and surrounding area, and would like any of these books, contact info@tss-stl.org.

Book: "Turner Syndrome: Across the Lifespan"

Book: "A Guide for Girls with TS: Ages 11-15"​

Book: "A Guide for Girls with TS: Ages 11-15"​

This ​​​book is a must have for any woman with TS or parent of a girl with TS! It breaks down all the various symptoms of TS into each individual chapter so you can get a full understanding of the syndrome. Very easy to read and ​informative! Topics include genetics, growth, heart health, thyroid issues,

puberty, infertility, bone health, diabetes, hearing, skin issues,​ school and learning issues, and many more. Highly recommended!


To see a sneak peek into the book, look below!

Book: "A Guide for Girls with TS: Ages 11-15"​

Book: "A Guide for Girls with TS: Ages 11-15"​

Book: "A Guide for Girls with TS: Ages 11-15"​

 This booklet will help teens understand Turner Syndrome and give them an idea of what it means to be a teenage girl with Turner Syndrome. It will provide teens with input and advice from other girls and women with TS about the issues they face and how they cope with them. A great tool for teens trying to understand how Turner Syndrome fits into their life! 

  

To see a sneak peek into the book, look below!

Book: "Coley's Story"​

Book: "A Guide for Girls with TS: Ages 11-15"​

Book: "Coley's Story"​

This booklet is full of photos and an upbeat description of what it's like to have TS from a 4 year old's perspective. For any young girl with TS, this book is guaranteed to become their favorite! It helps young girls with TS relate to other children who are going thru the same issues. A great tool for parents trying to explain TS to a young child! 

  

To see a sneak peek into the book, look below!

Sneak Peeks into the Books

Turner Syndrome: Across the Lifespan

Download PDF

Book: "A Guide for Girls with TS: Ages 11-15"

Download PDF

Book: "Coley's Story"​

Download PDF

Copyright © 2019 Turner Syndrome Support of St. Louis - All Rights Reserved.

 Turner Syndrome Support of St. Louis is a registered 501(c)(3) nonprofit organization. 

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