Are you parents of a newly diagnosed TS butterfly?
Or have you just learned of your own TS diagnosis?
We are here to help!
If you are like us, you have many questions. That is why we developed our Butterfly Phone Line! Volunteers from our local support group are here to answer your TS questions first hand.
The Butterfly Phone Line is a casual friendship where we can help you understand TS, and drawing upon our own experience, we can help you sort out some of the initial confusion you may have.
Some of us are parents who have TS daughters, while some of us are young adults or adults with TS. We have a wide range of experience with TS!
We have the ability to connect in a variety of ways. We can meet over a simple phone call, or if you prefer to chat virtually face to face, we can schedule a ZOOM and even have the opportunity to branch off into breakout rooms to discuss more personalized issues.
Just fill out the form below and we will have one of our volunteers from our support group reach out to you.
We would love to connect with you and talk about TS!
Thanks to donations, we are able to provide these 3 books for FREE to families of girls with Turner Syndrome who live in the St. Louis and surrounding areas:
~ Turner Syndrome: Across the Lifespan ~
This book is a must have for any woman with TS or parent of a girl with TS. It breaks down all the various symptoms of TS into each individual chapter so you can get a full understanding of the syndrome. Very easy to read and informative. Topics include genetics, growth, heart health, thyroid issues, puberty, infertility, bone health, diabetes, hearing, skin issues, school and learning issues, and more.
~ A Guide for Girls with TS: Ages 11-15 ~
This booklet will help teens understand Turner Syndrome and give them an idea of what it means to be a teenage girl with Turner Syndrome. It will provide teens with input and advice from other girls and women with TS about the issues they face and how they cope with them. A great tool for teens trying to understand how Turner Syndrome fits into their life.
~ Coley's Story ~
This booklet is full of photos and an upbeat description of what it's like to have TS from a 4 year old's perspective. For any young girl with TS, this book is guaranteed to become their favorite! It helps young girls with TS relate to other children who are going thru the same issues. A great tool for parents trying to explain TS to a young child.
Click here for a sneak peak into these books.
If you have a TS butterfly in your family, live in the St. Louis and surrounding area, and would like any of these books, contact firstname.lastname@example.org.
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Turner Syndrome Support of St. Louis is a registered 501(c)(3) nonprofit organization.