Watch Ch. 5 on Feb. ?? at TIME for TS interview with Cheryl Jost!

Welcome to Turner Syndrome Support for St. Louis!

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SET YOUR VCR/DVR!!

Be sure to check out Cheryl Jost's interview with Channel 5's Kay Quinn discussing Turner Syndrome Awareness Month!

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DATE: February TBA
TIME: TBA

Channel 5 KSDK

 

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Book Signing: "The Silent Syndrome"

 Join Cheryl on February 23, 2019 from Noon until (?) at Barnes & Noble in Fenton for a Book Signing!


This book is a heartwarming story of one TS womans journey of agony and pain, acceptance, and unconditional love.   Written by Cheryl Jost, former Turner Syndrome Society of St. Louis Chapter President. Personalized autographed books available for sale at the book signing! 


Barnes & Noble
Fenton Commons Shopping Center
721 Gravois Road
Fenton, MO 63026 

If you can't make it to the book signing, you can still get your copy at: 
Amazon
Xlibris
Barnes & Noble
 $3.99 E-Book,  $15.99 Paperback,  $24.99 Hardcover  

Events

Variety Show Benefit for Turner Syndrome

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April 26, 2019

Join Us For An Evening Of Fun, Laughter And Great Entertainment! The Queen of All Saints Variety Guild will be performing a Variety Show to help raise money for Turner Syndrome Support for St. Louis!

Find out more

Picnic

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June 2, 2019

Join us for some good old fashioned BBQ!  Rain or Shine!

Find out more

8th Annual Turner Syndrome Walk

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Mid-October TBA, 2019

Help us create awareness, raise funds, and just have some good old fashioned fun visiting with our TS circle of friends!​ ​Money raised at the annual walk will benefit the local Turner Syndrome programs that support the women, girls and families affected by TS in St. Louis and the surrounding areas.

Find out more

What is Turner Syndrome?

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It is a chromosomal condition that exclusively affects 1 in 2000 girls and occurs when one of the two X chromosomes normally found in females is missing or incomplete. A simple blood test, called a karyotype, will check for the absence of all or part of one X chromosome.


Under-diagnosis and delayed diagnosis of TS is a real problem, with the average age of diagnosis at 15 years, arriving too late for life-altering treatments, early interventions, and most importantly health screenings for a potentially fatal heart defect. The main goal of awareness is to reduce the age of a girl being diagnosed with TS from middle school age to early elementary school age.


Some of the possible indicators of TS are: short stature (average height untreated 4’8”), frequent ear infections, delayed puberty, wide short neck, small jaw, triangular face, many moles, puffy hands and feet, high arched palate, verbally gifted, low set ears and hairline, lazy eye, broad chest, drooping eyes, dental problems, upturned fingernails, educational difficulties (particularly math), social issues and anxiety.


For an overview of Turner Syndrome from the following organizations: 

Turner Syndrome Global Alliance​ 

Turner Syndrome Foundation 

Turner Syndrome Society of the United States​ 

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Donate

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All donations remain locally in the St. Louis and surrounding areas. ​​​


Your gift is 100% tax deductible. ​​Turner Syndrome Walk is a registered 501(c)(3) nonprofit organization. 


If you prefer to donate ​by check, please make it payable to: 

"Turner Syndrome Walk Inc." and mail it to P.O. Box 684​, Maryville, IL 62062. 


Donate here

Contact Us

618-391-7143

P.O. Box 684, Maryville, IL 62062

turnersyndromewalk@gmail.com