Join Our Newsletter

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Our local Turner Syndrome group offers support and a sense of community to those dealing with TS. This support group provides opportunities for individuals with Turners Syndrome to celebrate successes and build friendships, as well as a safe place to discuss fears and troublesome experiences.


Parents of girls with TS gain information to help their daughters, and the chance to network both with other parents and with successful adult women with TS.​


Adults and young adults with TS have a place to discuss topics related to TS, connect with others and enjoy social events together with new friendships.


There is no cost to join, it's FREE!

Just sign up for the Newsletter above and you're in!


We hope to see you at our next event!

What is Turner Syndrome?

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It is a chromosomal condition that exclusively affects 1 in 2000 girls and occurs when one of the two X chromosomes normally found in females is missing or incomplete. A simple blood test, called a karyotype, will check for the absence of all or part of one X chromosome.


Under-diagnosis and delayed diagnosis of TS is a real problem, with the average age of diagnosis at 15 years, arriving too late for life-altering treatments, early interventions, and most importantly health screenings for a potentially fatal heart defect. The main goal of awareness is to reduce the age of a girl being diagnosed with TS from middle school age to early elementary school age.


Some of the possible indicators of TS are: short stature (average height untreated 4’8”), frequent ear infections, delayed puberty, wide short neck, small jaw, triangular face, many moles, puffy hands and feet, high arched palate, verbally gifted, low set ears and hairline, lazy eye, broad chest, drooping eyes, dental problems, upturned fingernails, educational difficulties (particularly math), social issues and anxiety.


For an overview of Turner Syndrome from the following organizations: 

Turner Syndrome Global Alliance​ 

Turner Syndrome Foundation 

Turner Syndrome Society of the United States​ 

Events

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Turner Syndrome Annual Spring Picnic

A Visit with Avyanna - The Horse With TS

A Visit with Avyanna - The Horse With TS

May 30, 2020

Join us for some good old fashioned BBQ! Rain or Shine! Please RSVP so we have a head count. Plan on bringing a side dish to share.

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A Visit with Avyanna - The Horse With TS

A Visit with Avyanna - The Horse With TS

A Visit with Avyanna - The Horse With TS

Fall 2020 

Join us as we take a field trip out to Eolia, MO to visit our friend Avyanna - the horse with Turner Syndrome! Now that she is a little older, we will be able to ride her!
Details to come...

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Variety Show Benefit for Turner Syndrome

A Visit with Avyanna - The Horse With TS

Variety Show Benefit for Turner Syndrome

April TBD, 2021

Join Us For An Evening Of Fun, Laughter And Great Entertainment! The Queen of All Saints Variety Guild will be performing a Variety Show to help raise money for Turner Syndrome Support of St. Louis!

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SET YOUR VCR/DVR!!

Be sure to check out Cheryl Jost's interview with Channel 5's Kay Quinn discussing Turner Syndrome!

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DATE: TBA
TIME: TBA

Channel 5 KSDK

Donate

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All donations remain locally in the St. Louis and surrounding areas. ​​​


If you prefer to donate ​by check, please make it payable to 

"Turner Syndrome Support of St. Louis" and mail it to:
Turner Syndrome Support of St. Louis
c/o  Sandi Whitworth, Treasurer
113 Berg Crossing Drive
Augusta, MO 63332


Your gift is 100% tax deductible. ​​Turner Syndrome Support of St. Louis is a registered 501(c)(3) nonprofit organization.  


Contact Us

Turner Syndrome Support of St. Louis

13321 North Outer 40 Road Ste. 100, Town & Country, MO 63017

314-614-6474

info@tss-stl.org