TSGA was founded by parents of girls and young women with Turner syndrome. We aim to have a direct impact on the lives of girls, women, and families living with TS by working to include TS in the national conversation on genetic research. We are the voice for a patient and parent perspective as we seek collaboration with scientists, researchers, and doctors to ensure that TS research and resources have meaningful outcomes.
The goal of the Turner Syndrome Foundation is to support research initiatives and facilitate education programs that increase professional awareness and enhance medical care of those affected by Turner syndrome.
The Turner Syndrome Society of the United States provides health-related resources to patients, families and physicians for the diagnosis and treatment of Turner Syndrome. There are chapters and support groups located throughout the country. TSSUS holds an annual conference with speakers from a variety of professions including medical experts, social workers, educators and psychologists. These meetings provide an opportunity to exchange information on many topics of interest to TS patients of all ages.