And The "Butterfly Spotlight" Goes To....
To spotlight a member for a great achievement in any aspect of their life, please send nominations to info@tss-stl.org.
If you had the opportunity to choose any quote in the world...would you choose to advocate for Turner Syndrome?
Sophie Zambrano, a 6th grader at Parkway West Middle School who has Turner Syndrome, won her school's trivia night silent auction item: to create the quote on the school's marquee during February 2020. So proud of you Sophie and how you choose to advocate for TS! Way to go!
Cheryl Jost
Sophie Zambrano
Sophie Zambrano
Cheryl Jost, former Turner Syndrome Society of St. Louis Chapter President, was interviewed by Channel 5 Medical Reporter, Kay Quinn to discuss Turner Syndrome. See the February 28, 2014 interview here. Cheryl Jost has also written a book giving an inside personal view of living with Turner Syndrome through the eyes of an adult TS woman. The goal is to educate the public about TS with accurate information, try to break down stereotypes/misconceptions, and bring hope and support to newly diagnosed TS families. She has been working on this book for many years and has just recently published it!!.
$3.99 E-Book, $15.99 Paperback, $24.99 Hardcover
You can purchase your own copy of Cheryl's book at:
Sophie Zambrano
Sophie Zambrano
Sophie Zambrano
Sophie, age 9, has been spreading TS awareness this month in honor of February being Turner Syndrome Awareness Month. She was spotlighted on her Elementary School's Facebook Page by sharing the symptoms in hopes that parents will recognize undiagnosed daughters. The "West Newsmagazine" picked up the story and interviewed her to bring even more awareness across West County! Read the magazine article here. Way to go Super-Sophie!
Meet Avyanna...a horse with Turner Syndrome!
In 2016, a good friend of mine, Gloria, contacted me about her 5 month old horse. She just received the karyotype report and learned the horse has Turner Syndrome! Meet Avyanna! My friend was desperate to help the horse. She worked with both human doctors and veterinarians, but the veterinarians did not know anything about TS in horses! She turned to our Turner Syndrome Support group for answers.
Our local TS group here in St. Louis took a field trip out to the farm to meet Avyanna personally on November 12, 2016. My TS daughter was very excited to meet Avyanna, she naturally has an underlying connection to the horse! We noticed many similarities between the horse and the TS girls: short stature, moles, very intelligent, and the lovely TS mood swings/melt downs we have all come to know! We had such a fun time! Gloria had a veterinarian and the horse's trainers there to learn from our TS group. One of Gloria's main goals is to be able to concurrently help both the horse and the girls with TS. I think we can accomplish that! We look forward to visiting Avyanna again in the future for some horse back rides - after she has been broken in and trained! Thank you Gloria for extending an invitation to our TS circle of friends to come out to your beautiful horse farm!
Jill Shelby
Jill Shelby, a 43 year old woman with TS, and her husband James would like to announce that they are parents!! Baby Ryker James was born January 7, 2017, and added to their family through the miracle of adoption! Ryker was a very healthy 6 pounds 10 ounces and 20 inches long! The Shelbys began their adoption journey in the fall of 2011. As the adoption agency they chose was very small, they eventually signed up with a second agency. They also did a lot of marketing themselves on their own in hopes of being seen by the right expectant family. In October of 2016 they were chosen to be Ryker’s parents! They plan on having an open adoption with Ryker’s birth mom. Jill says that anyone considering adoption should seek out a strong support network, either through a mentor who has built her family through adoption, or through a Facebook support group, and do lots of reading!
Welcome Newly Diagnosed TS Families!
We would like to meet you! Check out our Butterfly Phone Line and how you can connect with us.