Complementary Books
Thanks to your generous donations, we are able to provide these 3 complementary books to families of girls with Turner Syndrome who live in the St. Louis and surrounding areas.
Book: "Turner Syndrome: Across the Lifespan"
This book is a must have for any woman with Turner Syndrome or parent of a girl with Turner Syndrome. It breaks down all the various symptoms of Turner Syndrome into each individual chapter so you can get a full understanding of the syndrome. Very easy to read and informative. Topics include genetics, growth, heart health, thyroid issues, puberty, infertility, bone health, diabetes, hearing, skin issues, school and learning issues, and many more. Highly recommended.
Book: "A Guide for Girls with TS: Ages 11-15"
This booklet will help teens understand Turner Syndrome and give them an idea of what it means to be a teenage girl with Turner Syndrome. It will provide teens with input and advice from other girls and women with TS about the issues they face and how they cope with them. A great tool for teens trying to understand how Turner Syndrome fits into their life.
Book: "Coley's Story"
This booklet is full of photos and an upbeat description of what it's like to have TS from a 4 year old's perspective. For any young girl with TS, this book is guaranteed to become their favorite. It helps young girls with TS relate to other children who are going thru the same issues. A great tool for parents trying to explain TS to a young child.
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Book: "A Guide for Girls with TS: Ages 11-15"
$5.00$0.00 - Member price -
Book: "A Guide for Girls with TS: Ages 11-15" (pdf digital download)
$0.00 -
Book: Coley's Story
$3.00$0.00 - Member price -
Book: Coley's Story (pdf digital download)
$0.00 -
Book: "Turner Syndrome: Across the Lifespan"
$20.00$0.00 - Member price
Tina Talks TURNER'S - A Girl's Guide to Living with TS
Tina Talks Turner’s is a video and interactive companion book that helps young girls understand their Turner Syndrome diagnosis and helps caregivers share that diagnosis. The child-friendly Tina Talks Turner’s book walks a young girl through her diagnosis, from receiving growth hormone treatment to feeling different amongst her classmates. A theme of hope permeates Tina’s message, showing girls that they are not alone in their diagnosis and can live the life of their dreams.
The companion book features journal pages for girls to share their feelings – providing meaningful insight to facilitate an open discussion.
The Silent Syndrome
Written by Cheryl Jost, Turner Syndrome Support of St. Louis President
This book is a heartwarming story of one TS woman's journey of agony and pain, acceptance, and unconditional love. Join her as she educates you about TS and tells you about her unbelievable voyage across the world to finally find her two amazing children and the relentless dedication to achieve the family she and her husband always dreamed of. This voyage created a deep passion to support other TS families and allowed her to meet some incredible people along the way. This book will describe how her diagnosis of TS allowed her to educate the public about this rare chromosomal disorder with accurate information, break down TS stereotypes/misconceptions, and bring hope and support to newly diagnosed TS families. She has been fortunate to do this in many ways and continues doing so today on a national level through the Turner Syndrome Society of the US (TSSUS).
This is an opportunity to share with TS individuals and their family and friends her story of living with TS and the true and honest feelings revealed through different life experiences and its affects. You won't want to miss this intriguing story of an amazing roller-coaster ride of discrimination, three emotional IVF attempts, the miracle of how she and her husband found their two adoptions, and the awesome work being done today to help TS individuals lead a normal and productive life.
This book will also offer a wide range of medical and support resources and offer hope and inspiration to newly diagnosed families who think they are out there all alone raising their TS daughter.
$3.99 E-Book, $15.99 Paperback, $24.99 Hardcover
You can purchase your own copy of Cheryl's book at:
Amazon
Barnes & Noble