Turner Syndrome Support 
of St. Louis
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    • Join A Group
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    • New Diagnosed TS Families
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    • En Español
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    • Amazon Wish List
    • eBay for Charity
  • More
    • Home
    • Events
      • Local Events
      • Variety Show
      • Picnic
      • Google Calendar
    • Clinics
      • Cardinal Glennon
      • Children's Hospital
      • Adults
    • Get Involved
      • Join A Group
      • Increase Awareness
      • Promote Research
    • Resources
      • New Diagnosed TS Families
      • Books
      • Organizations
      • Resources
      • En Español
    • Butterfly Spotlight
    • About Us
    • Ways To Donate
      • PayPal Giving Fund
      • Check
      • Venmo
      • GuideStar
      • Donation of Goods
      • Amazon Wish List
      • eBay for Charity
Turner Syndrome Support 
of St. Louis
  • Home
  • Events
    • Local Events
    • Variety Show
    • Picnic
    • Google Calendar
  • Clinics
    • Cardinal Glennon
    • Children's Hospital
    • Adults
  • Get Involved
    • Join A Group
    • Increase Awareness
    • Promote Research
  • Resources
    • New Diagnosed TS Families
    • Books
    • Organizations
    • Resources
    • En Español
  • Butterfly Spotlight
  • About Us
  • Ways To Donate
    • PayPal Giving Fund
    • Check
    • Venmo
    • GuideStar
    • Donation of Goods
    • Amazon Wish List
    • eBay for Charity

Resources

My Growth Charts​

Behavioral Health Resources

My Growth Charts​

The most advanced free software for capturing and charting measurements of height, weight, head circumference and BMI. Save data and track growth online. Grant temporary or permanent access to friends, family or physicians. Access WHO, CDC and specialty charts, including Turner Syndrome Growth Charts.
Find Out More

Varsity Tutors

Behavioral Health Resources

My Growth Charts​

The St. Louis-based Varsity Tutors has developed an online tutoring and learning platform - offering free live online classes, personalized 1-on-1 tutoring, and complete learning-at-home solutions.
Find Out More

Behavioral Health Resources

Behavioral Health Resources

Behavioral Health Resources

If you or someone you care for is in need of help for a situational or chronic mental health or substance use disorder, help is available. To help you get started, below is a list of resources for crisis hotlines as well as digital, virtual and in-person support.

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The Philly Fund

Sertoma - Hearing Aid Assistance

Behavioral Health Resources

Established in memory of Philip A. Frisella, this organization supports kids and families with learning challenges by providing scholarships.
Find Out More

Sertoma - Hearing Aid Assistance

Sertoma - Hearing Aid Assistance

Sertoma - Hearing Aid Assistance

Looking for hearing aid assistance? Sertoma is a civic, service organization with a national mission of hearing health. They have compiled a list of organizations that have programs to assist disadvantaged individuals to receive hearing devices.
Find Out More

Moving Tips for Hard-of-Hearing

Sertoma - Hearing Aid Assistance

Sertoma - Hearing Aid Assistance

We know that 37.5 million Americans report trouble with hearing and moving can pose many challenges with communication and safety. While technology has been very helpful for the deaf community or those suffering with hearing loss, activities like relocating can be stressful. 

Our community resource is completely free and includes:

  • Detailed Breakdown of Tips While Moving
  • Infographics on Safety After Settling In
  • Helpful Apps for Communicating 

Find Out More

Recreation Council of Greater St. Louis

Assisted Living for Seniors With Disabilities

Recreation Council of Greater St. Louis

We aim to connect individuals of all ages with developmental disabilities with a variety of recreation activities and programs across the greater St. Louis area. We work to ensure individuals are aware of and have access through funding to recreation opportunities, including community inclusive recreation programs, specialized city programs and camps and other community resources. Through these connections, we encourage them to build communities of their own. 


We provide much more than funding or information. We provide individuals with developmental disabilities with the opportunity to have fun, be active, socialize, gain independence and discover their life’s passion. Many individuals with developmental disabilities are isolated in school or in the community, and our programs provide the opportunity to make friends while doing something they enjoy, without expectation or comparison. We enable individuals with disabilities to enjoy life. 


Find Out More

Intelligent - College Planning Guide

Assisted Living for Seniors With Disabilities

Recreation Council of Greater St. Louis

 Pursuing higher education is exciting and stressful for every college-bound student, but it can be more challenging for those with learning disabilities. It's important that students who learn and think differently know how to get the additional support they may need.

We created an extensive planning guide for students with learning disabilities to ensure they understand their rights,  potential accommodations, and scholarships available specifically to them. 


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Assisted Living for Seniors With Disabilities

Assisted Living for Seniors With Disabilities

"In Case of Emergency" App for your Smart Phone

 Often, seniors with disabilities experience reduced choices over where to live, who to live with and what care to receive. Disabled seniors may be encouraged to receive care in an institutional setting, such as a nursing home, rather than receive suitable care in a less restrictive setting, such as an assisted living community.  


Assisted living can provide a less restrictive housing option for disabled seniors. Individuals can live as part of a community, which can help to increase social bonds and life enjoyment. Facilities typically offer a range of enrichment activities and generally have diverse on-site amenities. Compared to nursing homes, there are often more choices with regard to residents’ accommodations, such as private or shared rooms, in-room cooking facilities, separate living areas and pet friendliness. Services are generally tailored to meet individual needs, with an emphasis on maintaining elder dignity and helping seniors to live as independently as possible.  


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"In Case of Emergency" App for your Smart Phone

"In Case of Emergency" App for your Smart Phone

"In Case of Emergency" App for your Smart Phone

This free app for your smart phone is dedicated to the victims of the Boston Marathon Bombing and developed by a non-profit organization called About the Kids Foundation. It puts your emergency contact info as well as critical medical information on the lock screen of your cell phone. Blood type, allergies, medications, health conditions, etc. It was developed for first responders, EMTs and Emergency Room personnel to know quickly who you are and any health concerns when they first get to you in an emergency. If you are in a 911-Smart Phone Area when you call 911 from your cell phone, this fantastic feature allows your phone to automatically transmit the emergency contacts, home address, blood type, medications, allergies, known medical conditions, etc. to the dispatcher so EMS personnel will know your critical medical information before even reaching you! This is a great tool for anyone with a known medical condition such as Turner Syndrome!​

​​​​Free iPhone App​ 

Free Android App​

Website

Copyright © 2019 Turner Syndrome Support of St. Louis - All Rights Reserved.

 Turner Syndrome Support of St. Louis is a registered 501(c)(3) nonprofit organization. 

  • Our By-Laws

Welcome Newly Diagnosed TS Families!

We would like to meet you! Check out our Butterfly Phone Line and how you can connect with us.

Learn more