The TS Clinic Group plans activities for children to participate in during their visit to the TS Clinics in St. Louis. Activities include arts, crafts, games, snacks, etc. If you would be willing to help plan and work at these events, contact Cheryl Jost, firstname.lastname@example.org.
The Social Group plans the Annual Spring Picnic and various social activities throughout the year. The goal of these events is to promote camaraderie and education among girls with TS. If you would be willing to help plan these events, please contact Amy Zambrano,
The Fundraising Group plans fundraising events throughout the year, such as organizing ticket sales to the Variety Show. To help plan these events, please contact Cheryl Jost, email@example.com.
This group is targeted for butterflies who have graduated from high school to have a circle of TS friends to connect with and do social activities. Allison Creg is heading up the group! Contact Allison at firstname.lastname@example.org to be included in this group. Don't miss out on this social fun!
The Butterfly Phone Line is a way for newly diagnosed families of Turner Syndrome to have someone to call and ask questions to. If you would like to be a phone contact for newly diagnosed patients to ask questions, please email Stacey Aldrich at email@example.com.
Turner Syndrome Support for St. Louis creates a "STL TS Connection" database as a great way to connect with other girls in the St. Louis area who are also going through some of the same issues involved with TS.
Listings in the "STL TS Connection" database are entirely optional. To be included in the "STL TS Connection" database, please email the information needed for the datablase to firstname.lastname@example.org .
Access the "STL TS Connection" database by downloading the file below.
We are grateful to receive any goods to be used for arts and crafts or snacks for the young girls at the TS Clinics. For donations of these items, please contact Cheryl Jost, email@example.com.
Monetary donations are used to help purchase these items for the TS Clinics as well as literature to be given to parents of newly diagnosed children of TS. Donations also make social events, such as the TS Annual Spring Picnic, free for our TS circle of friends. This allows families touched by TS to build relationships and network among peers.
All donations remain locally in the St. Louis and surrounding areas.
If you prefer to donate by check, please make it payable to:
"Turner Syndrome.", 1338 Rusticview Drive, Ballwin, MO 63011
NIGMS Repository at Coriell Institute for Medical Research - "Banking for the future" by donating a sample to a cell repository is an investment that has the potential to greatly accelerate, improve and advance scientific research on Turner Syndrome. Please consider donating a sample to the NIGMS Repository at Coriell. Download the file below for more information.
Find a clinical trial that is right for you!
The Turner Syndrome Research Exchange is an exclusive global survey designed to help researchers gain a deeper understanding of Turner Syndrome. The goal is improved diagnosis and medical care, as well as empowerment of patients and families through knowledge, connections, and support.
What is different from any other surveys? You will have full control of your de-identified data, choosing how you'd like your information to be shared. Once you join, you are also able to explore other's data to help you understand your own health.
Stand together with TSRX to help the Turner Syndrome community. All patients and caregivers are encouraged to join!
"Mathematics Learning Among Children With or Without Turner Syndrome." The University of Minnesota is recruiting child participants for a study to understand how early language, problem-solving, and number skills shape future mathematical learning. Download the file below for more information.
February is Turner Syndrome Awareness Month!
Help raise awareness in your local area:
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