Become Involved

Join Our Local Support Group: Turner Syndrome Support for St. Louis

Our local Turner Syndrome group offers support and a sense of community to those dealing with TS. This support group provides opportunities for individuals with Turners Syndrome to celebrate successes and build friendships, as well as a safe place to discuss fears, troublesome experiences and "taboo" subjects.


Parents of girls with TS gain information to help their daughters, and the chance to network both with other parents and with successful adult women with TS.​


There is no cost to join, it's FREE! 


Get e-mail updates on events, upcoming projects, and how you can help! ​To join our local group, just sign up for the Newsletter on the Home Page of this website!


We hope to see you at our next event!

Connect with Others

Turner Syndrome Support for St. Louis ​creates a "STL TS Connection" database​ as a great way to connect with other girls in the St. Louis area who are also going through some of the same issues involved with TS. 


​Listings in the "STL TS Connection" database​ are entirely optional. To be included in the "STL TS Connection" database​, please email the information needed for the datablase to amyzambrano@yahoo.com .


Access the "STL TS Connection" database​ by downloading the file below.

Donate

We are grateful to receive any goods to be used for arts and crafts or snacks for the young girls at the TS Clinics. For donations of these items, please contact Cheryl Jost, cheryljost@sbcglobal.net.  


Monetary donations are used to help purchase these items for the TS Clinics as well as literature to be given to parents of newly diagnosed children of TS. ​​​Donations also make social events, such as the TS Annual Spring Picnic, free for our TS circle of friends. This allows families touched by TS to build relationships and network among peers. ​


All donations remain locally in the St. Louis and surrounding areas. ​​​


Your gift is 100% tax deductible. ​​Turner Syndrome Walk is a registered 501(c)(3) nonprofit organization.


If you prefer to donate ​by check, please make it payable to: 

"Turner Syndrome Walk Inc.", P.O. Box 684​, Maryville, IL 62062. 


Thank you!

Volunteer to be on a Committee

TS Clinic Committee​​

Turner Syndrome Support for St. Louis plans activities for the children to participate in during their visit to the TS Clinics in St. Louis. Activities include arts, crafts, games, snacks, etc. ​If you would be willing to help plan and work at these events, contact Cheryl Jost,

cheryljost@sbcglobal.net

Social Committee​

Turner Syndrome Support for St. Louis​ hosts an Annual Spring Picnic and various activities throughout the year. The goal of these events is to promote camaraderie and education among girls with TS. If you would be willing to help plan these events, please contact Amy Zambrano,

amyzambrano@yahoo.com

Fundraising Committee

Turner Syndrome Support for St. Louis plans the Annual TS Walk and from time to time hosts fundraising events. To help plan these events, please contact Brittany Hall, turnersyndromewalk@gmail.com

Promote Research

NIGMS Repository​

NIGMS Repository at Coriell Institute for Medical Research - "Banking for the future" by donating a sample to a cell repository is an investment that has the potential to greatly accelerate, improve and advance scientific research on Turner Syndrome. Please consider donating a sample to the NIGMS Repository at Coriell.​ Download the file below for more information

Clinical Trials

Find a clinical trial that is right for you!

Join the Turner Syndrome Research Exchange (TSRX)

The Turner Syndrome Research Exchange is an exclusive global survey designed to help researchers gain a deeper understanding of Turner Syndrome. The goal is improved diagnosis and medical care, as well as empowerment of patients and families through knowledge, connections, and support.

What is different from any other surveys? You will have full control of your de-identified data, choosing how you'd like your information to be shared. Once you join, you are also able to explore other's data to help you understand your own health.

Stand together with TSRX to help the Turner Syndrome community. All patients and caregivers are encouraged to join!

Participate in a Mathematics Study, ages 4-7

"Mathematics Learning Among Children With or Without Turner Syndrome." The University of Minnesota is recruiting child participants for a study to understand how early language, problem-solving, and number skills shape future mathematical learning. Download the file below for more information


Increase Awareness and Educate Others

February is Turner Syndrome Awareness Month!
Help raise awareness in your local area: 

  • Download the flyer below to put on bulletin boards at your local coffee shop, sandwich shop, children's after school activities, etc. Let people know about TS! It's more common than ​Cystic Fibrosis!
  • Have your child's pediatrician and school nurse complete this online 1-hour workshop to receive 1 FREE Continuing Education Credit. ​It will ensure that healthcare providers are not failing to recognize a diagnosis of TS! Click Here​
  • Get a TSS-STL Awareness Sticker to put on your car! Let those mom's in Walmart's parking lot see the symptoms of TS and possibly relate to their undiagnosed daughter! ​Get Your Awareness Sticker:​​ turnersyndromewalk@gmail.com
  • Have your daughter's principal put an article about TS in the school's Feburay E-Newsletter. Download the template below, copy/paste and email it to your principal! Also, attach the downloadable TS Awareness Flyer and Proclamation to it!
  • Share your own personal TS story with anyone who will listen!! Talk about TS! Talk, Talk, Talk! Spread Awareness! You will come across people who are also touched by TS. Invite them to our website and to join our group!